I made this video for Amber Karnes and folks at https://bodypositiveyoga.com/ about how I navigate my disability, chronic illness, and chronic pain. I hope you get something from it!
That would be my neurologist, she’s great. She listens intently, reviews my scans with me, and often has to remind me “if you have brainstem surgery, you will die”, not in a pessimistic way—but very realistic and necessary for me to hear.
This is an issue I never even considered before I became disabled in 2016. No judgement here if that’s you too, but if after reading this short and sweet diddy...if it hasn’t at least opened your mind a bit about how absolutely little disability is portrayed in the media (and usually it’s seen as a “bad” or “devastating” thing)—then I don’t know if I can help. But I’ll try!
Hi BFFs! I’m still here!
Tis’ the season to be blogging I guess! Have you heard of Blogmas? I’m totally not doing it.
Let me tell you why as a disabled human, a person with disabilities, and as a kind and thoughtful soul in a slightly damaged—but never defective—earth suit, it is important to me that this be addressed.
Personally I am very excited for this incredible documentary because:
Maggie is my brain twin (which is what I like to say because we have the same rare diagnoses: CCM and HOD!) and I’ll be rooting for her until the cows come home…which is always because I don’t own any, plus, I hear they’re bad apartment pets…