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My Invisible BFF

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An update on life

July 1, 2022 Erin Loughran

Hi everyone! It's so good to see you here. I am writing my blogs now with dictation! Just look at my set up here, I've got a MacBook Pro, a Bluetooth keyboard that is single-handed and backlit, my adaptive mouse, my assistive bar for my hands to rest on, and my big ass monitor.

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Tags cabin, update, life, symptoms, stable, adaptive, adaptive technology
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Whoop, here it is.

February 2, 2020 Erin Loughran

As I sit here, propped up on a couch, typing into my Notes on my phone with my money thumb (my left thumb that does all the typing), I realized I haven’t given a health rundown in about a year!

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Tags Taz, hope, happy, disability, Pool therapy, parents, symptoms, grateful, update
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Happy 3-Year Brainaversary to Me

August 30, 2019 Erin Loughran

Well it’s that time of year again that I relive my most intense moments, and look back at the relative shitshow of symptoms that have multiplied and taken my life hostage these past three years.

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Tags hope, strength, august, symptoms, brainaversary, HOD
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It's My 2-Year Brain-a-versary

September 1, 2018 Erin Loughran
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I couldn’t picture what my 2-year brain-a-versary would look like a year and a half ago.

To be absolutely, completely honest, I can’t say that I’m doing a whole lot better than I was in 2016 either.

But, when I really thought about why I’d want to celebrate my life getting flipped, turned upside down (announced on social media link), it all comes down to this: I listened to my body and I went in.

It’s so simple, but it obviously turned out to be a really big deal.

Trust yourself, your body always knows what’s up.

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Tags brainaversary, brain injury, stroke-like, symptoms, memes, reflection, Taz, breathe, advice
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It really does take a village: Guest Post

November 21, 2017 Beth Loughran

I needed to learn that while I can’t fix my daughter, I can be present with her, I can be there, hold her hand, help her maneuver through this new “normal” that is her life and ours.

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Tags cavernomas, caregiver, parents, living in the moment, life lesson, mom, brain bleed, symptoms, control
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Halloween, E.T., and a glossary...oh my!

November 2, 2017 Erin Loughran

I wholeheartedly believe in comfort, and cleverness especially, in a good Halloween costume and this did not disappoint...Also, it has come to my attention that I need to define some terms that I use a lot in my writing.

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Tags costume, rollator, PT, Halloween, glossary, photos, symptoms, spoons, spoonie, spoon theory, invisible
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