That would be my neurologist, she’s great. She listens intently, reviews my scans with me, and often has to remind me “if you have brainstem surgery, you will die”, not in a pessimistic way—but very realistic and necessary for me to hear.
Read moreCurious about Cerebral Cavernomas? We got you, boo.
There's a lot of good information for those newly diagnosed with CCM OR for family/friends to understand a bit more OR general good advice for chronic illnesses OR ya' know being jealous of brain surgery (yes I'll admit I was, until I realized that was ludicrous).
Read moreIt really does take a village: Guest Post
I needed to learn that while I can’t fix my daughter, I can be present with her, I can be there, hold her hand, help her maneuver through this new “normal” that is her life and ours.
Read moreArchive post two: CCM life & a third opinion
For anyone on pins and needles as to the outcome of my appointments with Dr. Awad in Chicago, here goes:
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