Let’s get down to it, shall we? I first met Megan, my PCA (Patient Care Assistant), about 3 years ago in an elevator with a cute, albeit the tiniest dog I’d ever seen. We happened to both get off at the same floor. “Hi I’m Megan!”, she declared. “I work with your neighbors doing home healthcare and I take their dog out.” I was like, “cool so nice to meet you.” In my head, I thought she is so nice I want to be friends with her! And that’s how everything began.
Read moreHalloween 2019
Talking about my costume, and the awesomeness that came with being Elton, this year doesn’t do it justice.
Read moreHappy 3-Year Brainaversary to Me
Well it’s that time of year again that I relive my most intense moments, and look back at the relative shitshow of symptoms that have multiplied and taken my life hostage these past three years.
Read moreNavigating disability, chronic illness, and chronic pain
I made this video for Amber Karnes and folks at https://bodypositiveyoga.com/ about how I navigate my disability, chronic illness, and chronic pain. I hope you get something from it!
Read moreHow I feel about my most recent trip to Mayo Clinic and other life updates
That would be my neurologist, she’s great. She listens intently, reviews my scans with me, and often has to remind me “if you have brainstem surgery, you will die”, not in a pessimistic way—but very realistic and necessary for me to hear.
Read moreWhy I only watch shows and movies about disabled people with actual disabled actors
This is an issue I never even considered before I became disabled in 2016. No judgement here if that’s you too, but if after reading this short and sweet diddy...if it hasn’t at least opened your mind a bit about how absolutely little disability is portrayed in the media (and usually it’s seen as a “bad” or “devastating” thing)—then I don’t know if I can help. But I’ll try!
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