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My Invisible BFF

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Wrapping Presents

December 21, 2018 Erin Loughran

Hi BFFs! I’m still here!

Tis’ the season to be blogging I guess! Have you heard of Blogmas? I’m totally not doing it.

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Tags blogmas, holiday, BFF, Lipsync, December, happy new year
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Disability and Disabled Are Not Bad Words

November 9, 2018 Erin Loughran

Let me tell you why as a disabled human, a person with disabilities, and as a kind and thoughtful soul in a slightly damaged—but never defective—earth suit, it is important to me that this be addressed.

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Tags disabled, disability, bad words, my invisible bff, emotional baggage, medical conditions, ab, ableism, accessibility, invisible disability
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The Great Now What on World Stroke Day

October 29, 2018 Erin Loughran

Personally I am very excited for this incredible documentary because:

  1. Maggie is my brain twin (which is what I like to say because we have the same rare diagnoses: CCM and HOD!) and I’ll be rooting for her until the cows come home…which is always because I don’t own any, plus, I hear they’re bad apartment pets…

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The Power Of Yetting

October 19, 2018 Erin Loughran
Yet equals hope; think about it.

Yet equals hope; think about it.

‘I’m not able to leave bed yet today, maybe later.’ ‘Can you do (x, y, z thing) for me? My body/brain isn’t able yet, thanks.’

Today’s challenge: try to make the word “yet” a part of your ability vocabulary. Examples: I can’t do this (and/or insert activity here) yet. My body isn’t yet ready for doing that. No, I haven’t tried that yet, thanks for the suggestion.

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Tags yet, hope, invisible BFF, invisible illness, keep going, power of yet, yetting
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Hydration Nation! An HGTV Hydration Game

September 27, 2018 Erin Loughran

As I promised on social media, here is the HGTV Hydration Game I’ve been trying to get down the rules—official rules—for.

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Everyday I'm stumblin'

September 27, 2018 Erin Loughran

I rode in the car the other week and we went on a clover leaf on-ramp. I felt like I was a jar of Kool Aid and all my juice (blood) rushed to one side of my body. I seriously had no idea what to do.

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Tags air, shortness of breath, tachycardia, passenger, memories, dysautonomia, neurological diseases, CCM, kool-aid
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