The Three Medical Amigas

Since we met over a year ago, we found that even though our initial diagnoses were different, we face a helluva lot of the same challenges on. the. daily.

The sounding board of not only our friendship, but that of our parents (they are caregivers in both of our situations, #LuckyToHaveEm) plus our siblings too! Everyone in our tiny family community “gets it” more than literally anyone else; and that’s just how it is.

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Curious about Cerebral Cavernomas? We got you, boo.

There's a lot of good information for those newly diagnosed with CCM OR for family/friends to understand a bit more OR general good advice for chronic illnesses OR ya' know being jealous of brain surgery (yes I'll admit I was, until I realized that was ludicrous).

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For the love of Spoonies

What's a spoonie?

Read below, and/or you can look here for more details. Spoonies can have neurological disorders (stroke and MS for example), fibromyalgia, cancer (and post-cancer), lupus, and basically any chronic health dis-ease (I've left out A LOT). It's not anything to brag about, being a spoonie, but in some strange way we understand the suckfest, and the spoonie community is for the most part really great.

As a fun game, tell me what your spoonie name is! Mine is Achy McPillbox, so it's preeeeety accurate...

You don't need to be a Spoonie to participate, but extra points if you are! Also, there are no prizes for the best. Well, there should be actually...leave yours in a comment below!

Find your Spoonie name graphic

Find your Spoonie name graphic

XOXO

Ps: new to my site? Start here

PPs: Need support & upliftment from other fun invisible & chronic illness/disability peeps who get it? join our closed invisible/chronic illness FB group here