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My Invisible BFF

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Feel of Fortune: a glimpseĀ into how I feel post brain bleed.

September 17, 2017 Erin Loughran

The following is my fancy cool system for all the feels. Spoiler alert: it's not really cool or fancy.

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Tags feelings, symptoms, activities, rollercoaster, CCM, HOD
4 Comments

Archive post six: A new chapter

September 16, 2017 Erin Loughran

*Mind. Blown.* So I went to Mayo Clinic yesterday and finally saw a neurologist. 

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Tags new balance, hypertrophic olivary degeneration, HOD, CCM, Cerebral Cavernous Malformations, Angioma Alliance, neurologist, Pool therapy, PT, adaptive, thai chi
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Archive post five: Embracing my new balance (shoes & life)

September 16, 2017 Erin Loughran

The last few months have been all about embracing my new balance (yes, I stole that from the shoes...)

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Tags rollercoaster, new balance, strategies, symptoms, medication, PT, OT, CCM
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Archive post four: Living in the moment is all I can do

September 16, 2017 Erin Loughran

I weened off of my neuro meds to see what my baseline is (or what symptoms are due to the hemorrhages), and also because I didn't know what side-effect was related to which symptom.

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Tags symptoms, shortness of breath, tachycardia, MRI, PT, OT, living in the moment
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Archive post three: Rehab, neuropsych, & life

September 16, 2017 Erin Loughran

The past 24 hours have been really good, which is a cause for celebration! {I'm always cautiously optimistic with these CCM's...such a rollercoaster!} 

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Tags MRI, Neuro Psych, PT, OT, goals
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Archive post two: CCM life & a third opinion

September 16, 2017 Erin Loughran

For anyone on pins and needles as to the outcome of my appointments with Dr. Awad in Chicago, here goes:

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Tags neurosurgeon, cavernomas, CCM, healing, MRI, brain bleed, PT, OT, symptoms, stroke-like
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